¿Qué es calidad de vida para un paciente con cáncer?

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Ricardo Sánchez Pedraza, Fabio Alexander Sierra Matamoros, Elena Martín Cardinal

Resumen


Objetivo: Evaluar el concepto de calidad de vida desde la perspectiva del paciente con cáncer. Método: Se evaluaron 1029 pacientes con cáncer de cuello uterino, mama, próstata, estómago, colon-recto, y un grupo de pacientes menores de edad con diferentes tipos de cáncer, efectuando una pregunta abierta (¿Cómo definiría usted la calidad de vida?). El texto de las respuestas fue procesado para realizar análisis lexicográfico y análisis de correspondencias. Resultados: Las formas gráficas y los segmentos repetidos más frecuentes se relacionaron con conceptos de bienestar, salud, funcionalidad, buena alimentación, aspectos familiares y espirituales. Estos conceptos varían según el tipo de cáncer. El análisis de correspondencias sugiere tres dimensiones: cuidado, bienestar y aspectos sociofamiliares y alimentarios. Hubo asociación entre estas dimensiones y el tipo de cáncer (dimensión 1: pacientes pediátricos; dimensión 2: cáncer de mama, y dimensión 3: pacientes con cáncer de próstata). En el espacio multidimensional el cáncer pediátrico se diferencia de las otras localizaciones de la enfermedad. Conclusiones: El diseño de instrumentos para medir calidad de vida en pacientes con cáncer debe incorporar particularidades relacionadas con el diagnóstico específico de la enfermedad.

Palabras clave


calidad de vida; neoplasias; formación de concepto;

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Año20152016
Total483696

Referencias


(IARC), I. A. f. R. o. C., & (WHO), W. H. O. (2008). Globocan 2008: Cancer incidence and mortality worldwide in 2008. Lyon: IARC.

Aaronson, N. K. (1992). Assessing the quality of life of patients in cancer clinical trials: Common problems and common sense solutions. Eur J Cancer, 28A(8-9), 1304-1307.

Aaronson, N. K., Ahmedzai, S., Bergman, B., Bullinger, M., Cull, A., Duez, N. J., . . . et al. (1993). The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst, 85(5), 365-376.

Anota, A., Bascoul-Mollevi, C., Conroy, T., Guillemin, F., Velten, M., Jolly, D., . . . Bonnetain, F. (2014). Item response theory and factor analysis as a mean to characterize occurrence of response shift in a longitudinal quality of life study in breast cancer patients. Health Qual Life Outcomes, 12(1), 32. doi: 10.1186/1477-7525-12-32

Avolio, M., Montagnoli, S., Marino, M., Basso, D., Furia, G., Ricciardi, W., & de Belvis, A. G. (2013). Factors influencing quality of life for disabled and nondisabled elderly population: the results of a multiple correspondence analysis. Curr Gerontol Geriatr Res, 2013, 258274. doi: 10.1155/2013/258274

Bowden, A., & Fox-Rushby, J. A. (2003). A systematic and critical review of the process of translation and adaptation of generic health-related quality of life measures in Africa, Asia, Eastern Europe, the Middle East, South America. Soc Sci Med, 57(7), 1289-1306.

Bowling, A. (2005). Measuring health : a review of quality of life measurement scales (3rd ed.). Maidenhead, Berkshire, England ; New York: Open University Press.

Bramston, P., Chipuer, H., & Pretty, G. (2005). Conceptual principles of quality of life: an empirical exploration. J Intellect Disabil Res, 49(Pt 10), 728-733.

Camfield, L., & Ruta, D. (2007). 'Translation is not enough': using the Global Person Generated Index (GPGI) to assess individual quality of life in Bangladesh, Thailand, and Ethiopia. Qual Life Res, 16(6), 1039-1051. doi: 10.1007/s11136-007-9182-8

Camfield, L., & Skevington, S. M. (2008). On subjective well-being and quality of life. J Health Psychol, 13(6), 764-775. doi: 10.1177/1359105308093860

Camilleri-Brennan, J., Ruta, D. A., & Steele, R. J. (2002). Patient generated index: new instrument for measuring quality of life in patients with rectal cancer. World J Surg, 26(11), 1354-1359. doi: 10.1007/s00268-002-6360-2

Carr, A. J., & Higginson, I. J. (2001). Are quality of life measures patient centred? BMJ, 322(7298), 1357-1360.

Cella, D. F., Tulsky, D. S., Gray, G., Sarafian, B., Linn, E., Bonomi, A., . . . et al. (1993). The Functional Assessment of Cancer Therapy scale: development and validation of the general measure. J Clin Oncol, 11(3), 570-579.

Costa, P. S., Santos, N. C., Cunha, P., Cotter, J., & Sousa, N. (2013). The Use of Multiple Correspondence Analysis to Explore Associations between Categories of Qualitative Variables in Healthy Ageing. J Aging Res, 2013, 302163. doi: 10.1155/2013/302163

Chambers, L. W., Macdonald, L. A., Tugwell, P., Buchanan, W. W., & Kraag, G. (1982). The McMaster Health Index Questionnaire as a measure of quality of life for patients with rheumatoid disease. J Rheumatol, 9(5), 780-784.

Dazord, A. (1997). [Evaluation of care: taking into account the patients' quality of life and relational elements]. Rech Soins Infirm(50), 119-130.

Donovan, J. (1991). Patient education and the consultation: the importance of lay beliefs. Ann Rheum Dis, 50 Suppl 3, 418-421.

Herdman, M., Fox-Rushby, J., & Badia, X. (1997). 'Equivalence' and the translation and adaptation of health-related quality of life questionnaires. Qual Life Res, 6(3), 237-247.

Higginson, I. J., & Carr, A. J. (2001). Measuring quality of life: Using quality of life measures in the clinical setting. BMJ, 322(7297), 1297-1300.

Jirojanakul, P., Skevington, S. M., & Hudson, J. (2003). Predicting young children's quality of life. Soc Sci Med, 57(7), 1277-1288.

Joyce, C. R. B., McGee, H. M., & Ob̓oyle, C. A. (1999). Individual quality of life : approaches to conceptualisation and assessment. Amsterdam, The Netherlands: Harwood Academic.

Jozefiak, T., Larsson, B., Wichstrom, L., Wallander, J., & Mattejat, F. (2010). Quality of Life as reported by children and parents: a comparison between students and child psychiatric outpatients. Health Qual Life Outcomes, 8, 136. doi: 10.1186/1477-7525-8-136

Molzahn, A. E., Kalfoss, M., Schick Makaroff, K., & Skevington, S. M. (2011). Comparing the importance of different aspects of quality of life to older adults across diverse cultures. Age Ageing, 40(2), 192-199. doi: 10.1093/ageing/afq156

O'Connell, K. A., & Skevington, S. M. (2005). The relevance of spirituality, religion and personal beliefs to health-related quality of life: themes from focus groups in Britain. Br J Health Psychol, 10(Pt 3), 379-398.

O'Connell, K. A., & Skevington, S. M. (2007). To measure or not to measure? Reviewing the assessment of spirituality and religion in health-related quality of life. Chronic Illn, 3(1), 77-87.

O'Connell, K. A., & Skevington, S. M. (2010). Spiritual, religious, and personal beliefs are important and distinctive to assessing quality of life in health: a comparison of theoretical models. Br J Health Psychol, 15(Pt 4), 729-748. doi: 10.1348/135910709X479799

Ruta, D. A., Garratt, A. M., Leng, M., Russell, I. T., & MacDonald, L. M. (1994). A new approach to the measurement of quality of life. The Patient-Generated Index. Med Care, 32(11), 1109-1126.

Sanchez-Pedraza, R., Ballesteros, M. P., & Anzola, J. D. (2010). [The concept of quality of life in women suffering from cancer]. Rev Salud Publica (Bogota), 12(6), 889-902.

Sanchez, R., Alexander-Sierra, F., & Oliveros, R. (2012). Relationship between quality of life and clinical status in patients with gastrointestinal cancer. Rev Esp Enferm Dig, 104(11), 584-591.

Seidl, E. M., & Zannon, C. M. (2004). [Quality of life and health: conceptual and methodological issues]. Cad Saude Publica, 20(2), 580-588.

Skevington, S. M. (2002). Advancing cross-cultural research on quality of life: observations drawn from the WHOQOL development. World Health Organisation Quality of Life Assessment. Qual Life Res, 11(2), 135-144.

Skevington, S. M., Day, R., Chisholm, A., & Trueman, P. (2005). How much do doctors use quality of life information in primary care? Testing the trans-theoretical model of behaviour change. Qual Life Res, 14(4), 911-922.

Skevington, S. M., Dehner, S., Gillison, F. B., McGrath, E. J., & Lovell, C. R. (2014). How appropriate is the WHOQOL-BREF for assessing the quality of life of adolescents? Psychol Health, 29(3), 297-317. doi: 10.1080/08870446.2013.845668

Skevington, S. M., Gunson, K. S., & O'Connell, K. A. (2013). Introducing the WHOQOL-SRPB BREF: developing a short-form instrument for assessing spiritual, religious and personal beliefs within quality of life. Qual Life Res, 22(5), 1073-1083. doi: 10.1007/s11136-012-0237-0

Skevington, S. M., Sartorius, N., & Amir, M. (2004). Developing methods for assessing quality of life in different cultural settings. The history of the WHOQOL instruments. Soc Psychiatry Psychiatr Epidemiol, 39(1), 1-8. doi: 10.1007/s00127-004-0700-5

Skrzypczak, M., Czerniak, U., & Laski, P. (2012). Selected elements of socio-demographic status and lifestyle as factors determining subjective assessment of life in women after mastectomy. Contemp Oncol (Pozn), 16(6), 569-575. doi: 10.5114/wo.2012.32492

Slevin, M. L., Plant, H., Lynch, D., Drinkwater, J., & Gregory, W. M. (1988). Who should measure quality of life, the doctor or the patient? Br J Cancer, 57(1), 109-112.

Smith, K. W., Avis, N. E., & Assmann, S. F. (1999). Distinguishing between quality of life and health status in quality of life research: a meta-analysis. Qual Life Res, 8(5), 447-459.

Stenner, P. H., Cooper, D., & Skevington, S. M. (2003). Putting the Q into quality of life; the identification of subjective constructions of health-related quality of life using Q methodology. Soc Sci Med, 57(11), 2161-2172.

Testa, M. A. (2000). Interpretation of quality-of-life outcomes: issues that affect magnitude and meaning. Med Care, 38(9 Suppl), II166-174.

Vig, E. K., Davenport, N. A., & Pearlman, R. A. (2002). Good deaths, bad deaths, and preferences for the end of life: a qualitative study of geriatric outpatients. J Am Geriatr Soc, 50(9), 1541-1548.

Wallander, J. L., Schmitt, M., & Koot, H. M. (2001). Quality of life measurement in children and adolescents: issues, instruments, and applications. J Clin Psychol, 57(4), 571-585.