Recomendações para a prescrição de dispositivos de assistência na reabilitação de doentes com distrofia muscular de Duchenne

DOI:  https://doi.org/10.12804/revistas.urosario.edu.co/revsalud/a.13741

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Publicado: abr 22, 2025
Edição: v. 23 n. Especial (2025): Revista Ciencias de la Salud
Seção Artículo de investigación clínica o experimental


Palavras-chave: Distrofia muscular de Duchenne consenso recomendações ortótese cadeira de rodas

Conteúdo do artigo principal

Autores

Sandra Castellar
Departamento Medicina física y Rehabilitación. Instituto Roosevelt y del Hospital Universitario Nacional de Colombia. Profesor titular. Universidad Nacional de Colombia. Bogotá, Colombia
  Edicson Ruiz-Ospina
Departamento Medicina física y Rehabilitación. Instituto Roosevelt y profesor titular. Universidad Nacional de Colombia. Bogotá, Colombia
Miguel Ángel Gutiérrez-Ramírez
Profesor titular. Universidad Nacional de Colombia. Bogotá, Colombia
Sandy Arias-Hernández
Departamento de terapia Ocupacional. Instituto Roosevelt. Bogotá, Colombia.
  Jhon Jairo Forero-Díaz
Departamento Medicina física y Rehabilitación y el Centro de investigación en fisiatría y electrodiagnóstico. Instituto Roosevelt. Bogotá, Colombia.
Fernando Ortiz-Corredor
Departamento Medicina física y Rehabilitación. Instituto Roosevelt y del  Hospital Universitario Nacional de Colombia. Bogotá, Colombia.
Diana Soto-Peña
Coordinadora de Fisioterapia. Instituto Roosevelt. Bogotá, Colombia
Paula Suárez-Castro
Junta de sedestación. Instituto Roosevelt. Bogotá, Colombia.
Laura Velásquez-Ballesteros
Departamento de Fisioterapia. Sanitas. Bogotá, Colombia.
Francisco Zuluaga-Osorio
Centro Técnico Ortopédico LTDA. Bogotá, Colombia

Resumo

Nos doentes com DMD, a capacidade de andar é gradualmente reduzida até à perda da marcha por volta dos 9 anos de idade. Embora a progressão da doença seja inevitável, uma reabilitação abrangente tem como objetivo prolongar a função motora grossa e manual, minimizar as contraturas, promover a saúde óssea, proteger o posicionamento correto da coluna vertebral e prolongar a marcha, melhorando a qualidade de vida e a transição para a adolescência e a idade adulta. As intervenções de reabilitação para a DMD incluem a utilização de ortóteses e cadeiras de rodas. Materiais e métodos: Foi constituído um painel de peritos com conhecimentos e experiência no tratamento de doentes com distrofia muscular de Duchenne. Com base na revisão das provas disponíveis, nos seus conhecimentos, na sua experiência clínica e nas características do sistema de saúde colombiano. As recomendações foram submetidas a uma votação (mais de 85% de favorabilidade em dois ciclos de votação). No caso de uma percentagem de concordância inferior à estabelecida, a recomendação foi novamente discutida, tendo sido efectuado um segundo ciclo de votação. Resultados e discussão: É emitida uma série de recomendações sobre a prescrição de ajudas técnicas na reabilitação (ortóteses e cadeiras de rodas) para doentes com distrofia muscular de Duchenne. São necessários mais estudos para resolver as questões que não foram respondidas até à data sobre a prescrição de ajudas técnicas em doentes com esta doença.

Biografia do Autor

Sandra Castellar, Departamento Medicina física y Rehabilitación. Instituto Roosevelt y del Hospital Universitario Nacional de Colombia. Profesor titular. Universidad Nacional de Colombia. Bogotá, Colombia

Departamento Medicina física y Rehabilitación. Instituto Roosevelt. Bogotá, Colombia.

Departamento Medicina física y Rehabilitación. Hospital Universitario Nacional de Colombia. Bogotá, Colombia.

Profesor titular. Universidad Nacional de Colombia. Bogotá, Colombia

Edicson Ruiz-Ospina, Departamento Medicina física y Rehabilitación. Instituto Roosevelt y profesor titular. Universidad Nacional de Colombia. Bogotá, Colombia

Departamento Medicina física y Rehabilitación. Instituto Roosevelt. Bogotá, Colombia.

Profesor titular. Universidad Nacional de Colombia. Bogotá, Colombia

Miguel Ángel Gutiérrez-Ramírez, Profesor titular. Universidad Nacional de Colombia. Bogotá, Colombia

Profesor titular. Universidad Nacional de Colombia. Bogotá, Colombia

Sandy Arias-Hernández, Departamento de terapia Ocupacional. Instituto Roosevelt. Bogotá, Colombia.

Departamento de terapia Ocupacional. Instituto Roosevelt. Bogotá, Colombia.

Jhon Jairo Forero-Díaz, Departamento Medicina física y Rehabilitación y el Centro de investigación en fisiatría y electrodiagnóstico. Instituto Roosevelt. Bogotá, Colombia.

Departamento Medicina física y Rehabilitación. Instituto Roosevelt. Bogotá, Colombia.

Centro de investigación en fisiatría y electrodiagnóstico. Instituto Roosevelt. Bogotá, Colombia.

Fernando Ortiz-Corredor, Departamento Medicina física y Rehabilitación. Instituto Roosevelt y del  Hospital Universitario Nacional de Colombia. Bogotá, Colombia.

Departamento Medicina física y Rehabilitación. Instituto Roosevelt y del  Hospital Universitario Nacional de Colombia. Bogotá, Colombia.

Diana Soto-Peña, Coordinadora de Fisioterapia. Instituto Roosevelt. Bogotá, Colombia

Coordinadora de Fisioterapia. Instituto Roosevelt. Bogotá, Colombia

Paula Suárez-Castro, Junta de sedestación. Instituto Roosevelt. Bogotá, Colombia.

Junta de sedestación. Instituto Roosevelt. Bogotá, Colombia.

Laura Velásquez-Ballesteros, Departamento de Fisioterapia. Sanitas. Bogotá, Colombia.

Departamento de Fisioterapia. Sanitas. Bogotá, Colombia.

Francisco Zuluaga-Osorio, Centro Técnico Ortopédico LTDA. Bogotá, Colombia

Centro Técnico Ortopédico LTDA. Bogotá, Colombia

Como Citar
Castellar, S., Ruiz-Ospina, E. ., Gutiérrez-Ramírez, M. Ángel ., Arias-Hernández, S., Forero-Díaz, J. J. ., Ortiz-Corredor, F., … Zuluaga-Osorio, F. . (2025). Recomendações para a prescrição de dispositivos de assistência na reabilitação de doentes com distrofia muscular de Duchenne . Revista Ciencias De La Salud, 23(Especial), 1–19. https://doi.org/10.12804/revistas.urosario.edu.co/revsalud/a.13741
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